{"id":77,"date":"2024-01-08T22:26:44","date_gmt":"2024-01-08T21:26:44","guid":{"rendered":"https:\/\/www.velkymalyprinc.sk\/?page_id=77"},"modified":"2025-01-26T20:59:19","modified_gmt":"2025-01-26T19:59:19","slug":"vilkov-pribeh-2","status":"publish","type":"page","link":"https:\/\/www.velkymalyprinc.sk\/?page_id=77","title":{"rendered":"Vilkov pr\u00edbeh"},"content":{"rendered":"\n

Vilkov pr\u00edbeh<\/h2>\n\n\n\n
\"\"<\/figure>\n\n\n\n

Vol\u00e1m tieto deck\u00e1 \u2013 \u201edeti s pr\u00edbehom\u201c \u2013 za\u017eili toho za svoj kratulink\u00fd \u017eivot \u010dastokr\u00e1t viac, ako stihne be\u017en\u00fd \u010dlovek za cel\u00fd \u017eivot.  A na to, aby ste sa podrobne dozvedeli, \u010do u\u017e maj\u00fa za sebou, mus\u00ed odznie\u0165 pr\u00edbeh. Toto je ten n\u00e1\u0161 \u2013 Vilkov.<\/p>\n\n\n\n

Bol druh\u00fd september 2019 a k\u00fdm v\u0161etci vyprev\u00e1dzali deck\u00e1 do \u0161koly, zo m\u0148a sa stala mama. Vilu\u0161ko sa narodil o 9:12 v pondelok. \u201eJe vlasat\u00fd a cik\u00e1 na V\u00e1s, vezieme ho do bezpe\u010dia.\u201c Plakala som. Od stra\u0161ideln\u00e9ho strachu a dojatia z\u00e1rove\u0148. Bezpe\u010die predstavoval t\u00edm \u0161pecialistov, potreboval ihne\u010f intub\u00e1ciu a prevoz na detsk\u00fa JIS. <\/p>\n\n\n\n

Vilu\u0161ko sa toti\u017e narodil s vrodenou v\u00fdvojovou vadou (vvv).  Na ve\u013ekom morfologickom ultrazvuku v 25. t\u00fd\u017edni tehotenstva mu zistili najprv vych\u00fdlen\u00e9 srdce zo stredu a nesk\u00f4r kongenit\u00e1lnu diafragmatick\u00fa herniu. \u013dudsky povedan\u00e9 \u2013 narodil sa s br\u00e1ni\u010dn\u00fdm pruhom alebo prietr\u017eou. T\u00e1to vvv vznik\u00e1 v 8.-10. t\u00fd\u017edni vn\u00fatromaternicov\u00e9ho v\u00fdvoja, kedy sa br\u00e1nica neuzavrie \u00faplne. Zostane v nej diera a tak sa niektor\u00e9 bru\u0161n\u00e9 org\u00e1ny natla\u010dia do priestoru bud\u00facich p\u013e\u00fac, ktor\u00e9 sa n\u00e1sledne nem\u00f4\u017eu rozvin\u00fa\u0165 plnohodnotne. Z\u00e1rove\u0148 to preskupenie org\u00e1nov vytv\u00e1ra tlak aj na srdce a to b\u00fdva minim\u00e1lne vych\u00fdlen\u00e9, ak nie aj po\u0161koden\u00e9. Vilko mal v \u013eavej \u010dasti p\u013e\u00fac na\u0161\u0165astie natla\u010den\u00e9 \u201elen\u201c tenk\u00e9 \u010drevo, \u010das\u0165 \u017eal\u00fadka a sleziny, srdce mal v poriadku. Po naroden\u00ed by nepre\u017eil bez okam\u017eit\u00e9ho napojenia na p\u013e\u00facnu ventil\u00e1ciu.<\/p>\n\n\n\n

Prv\u00fa oper\u00e1ciu absolvoval ako jednod\u0148ov\u00fd trojkilov\u00fd novorodenec. Doc. Babala z N\u00fadch mu za\u0161il dieru v br\u00e1nici a doslova upratal org\u00e1ny v bru\u0161nej dutine. Z\u00e1zrak. A Vilu\u0161ko aj bol. \u010co sa t\u00fdka tej z\u00e1kladnej diagn\u00f3zy, hovorili o \u0148om ako \u0161\u0165astlivcovi \u2013 na desiaty de\u0148 od oper\u00e1cie d\u00fdchal \u00faplne s\u00e1m, utla\u010den\u00e9 p\u013e\u00faca sa mu pekne rozv\u00edjali. Po\u010das tejto hospitaliz\u00e1cie absolvoval e\u0161te mal\u00fd z\u00e1krok, kv\u00f4li poopera\u010dn\u00fdm komplik\u00e1ci\u00e1m, no domov sme si ho niesli u\u017e na 26. de\u0148 \u017eivota. Lebo s\u00fa deti, ktor\u00e9 s t\u00fdmto probl\u00e9mom str\u00e1via v nemocnici mesiace.<\/p>\n\n\n\n

Prv\u00fd rok sme pre\u017eili viac menej ako be\u017en\u00e1 rodina s novo\u010dlovie\u010dkom. Okrem t\u00fd\u017edenn\u00fdch lek\u00e1rskych kontrol, jazvy, cvi\u010denia Vojtovej met\u00f3dy a umel\u00e9ho mlieka bol Vilko prakticky norm\u00e1lne die\u0165a s jemn\u00fdm zaost\u00e1van\u00edm vo v\u00fdvoji. Nosil s\u00edce od 6. do 10. mesiaca krani\u00e1lnu ort\u00e9zu, no pri tom v\u0161etkom, \u010do u\u017e zvl\u00e1dol, sme to brali celkom na\u013eahko. To dobehne, vraveli. To vycvi\u010d\u00edte. \u201eNeurologicky chor\u00e9 die\u0165a je v bud\u00facnosti len tak \u0161ikovn\u00e9, ako to rodi\u010dia vymakaj\u00fa.\u201c Vilu\u0161ko bol v\u00fdrazne hypotonick\u00fd, mal slab\u00e9 svaly. Prakticky ako tak\u00e1 handrov\u00e1 b\u00e1bika. Uvedomovala som si to, len ke\u010f som n\u00e1hodou dr\u017eala in\u00e9 deti, \u017ee to moje je akoby z \u201ein\u00e9ho materi\u00e1lu\u201c.<\/p>\n\n\n\n

Ke\u010f mal rok, prestali sme v tom by\u0165 ako rodi\u010dia pokojn\u00ed. Napriek tomu , \u017ee od troch t\u00fd\u017ed\u0148ov \u017eivota cvi\u010dil, bol Vil\u00edk oproti rovesn\u00edkom ve\u013emi pozadu. Prakticky len le\u017eal, vedel sa preto\u010di\u0165 z bru\u0161ka na chrb\u00e1t aj sp\u00e4\u0165, ale to bolo v\u0161etko. V 13. mesiacoch mu operovali e\u0161te raz bru\u0161ko. Mal svalov\u00fd pruh a oba semenn\u00edky zat\u00falan\u00e9 niekde v dutine bru\u0161nej. No mesiac po oper\u00e1cii sa za\u010dal \u0161\u00facha\u0165 po bruchu. Mal \u010fal\u0161iu ort\u00e9zu na hlave, nako\u013eko st\u00e1le ve\u013ea \u010dasu polihoval a nechceli sme, aby sa mu hl\u00e1vka znovu zdeformovala. On si v\u00e1m tou hl\u00e1vkou rozh\u00fapal trup a s t\u00fdm bruchom pln\u00fdm dier ( 7 ich bolo) sa za\u010dal \u010dudno-smie\u0161nym sp\u00f4sobom pres\u00fava\u0165 po byte. Vtedy sme spozorneli, \u017ee mu mus\u00edme, \u017ee chceme nejako inak pom\u00f4c\u0165, lebo  jeho hlava ve\u013emi chcela no to hypotonick\u00e9 telo sa k nej nechcelo prida\u0165. Nevl\u00e1dalo, nevedelo ako.<\/p>\n\n\n\n

Tak sme sa ocitli prv\u00fdkrat v Pie\u0161\u0165anoch na intenz\u00edvnom rehabilita\u010dnom pobyte. Vilko mal vtedy 17 mesiacov. Po dvoch t\u00fd\u017ed\u0148och sme odch\u00e1dzali s n\u00e1dejou a \u00faplne nov\u00fdm cvi\u010debn\u00fdm pl\u00e1nom. V dev\u00e4tn\u00e1stom mesiaci \u017eivota mal Vilu\u0161ko nateraz posledn\u00fa oper\u00e1ciu \u2013 semenn\u00edky mu vr\u00e1tili do mie\u0161kov. A mesiac na to sme op\u00e4\u0165 cvi\u010dili v Pie\u0161\u0165anoch. V\u00fdsledkom bolo, \u017ee sa \u0161es\u0165 t\u00fd\u017ed\u0148ov pred druh\u00fdmi narodeninami kone\u010dne posadil. Video ako sa mu to podarilo, patr\u00ed dodnes medzi na\u0161e najob\u013e\u00fabenej\u0161ie. Bol to pre\u0148ho aj n\u00e1s z\u00e1sadn\u00fd zlom, prv\u00fdkr\u00e1t dostalo to slab\u00e9 telo svoju \u0165a\u017ek\u00fa hlavu do vy\u0161\u0161ej polohy. Chcelo to potom e\u0161te ve\u013ea denno-denn\u00e9ho drilu a cvi\u010denia, aby Vilko chodil. Prv\u00e9 samostatn\u00e9 kroky bez opory sa mu podarilo urobi\u0165 ako 2,5 ro\u010dn\u00e9mu. To dobehne, vraveli. To ke\u010f sa  u\u017e rozbehne, to isto v\u0161etko dobehne vraveli. Za\u010dne rozpr\u00e1va\u0165 a jes\u0165 a … v\u0161etko dobehne.<\/p>\n\n\n\n

Nedobehne, dnes u\u017e vieme. Nie tak ako sme d\u00fafali.<\/p>\n\n\n\n

Od jeho prv\u00fdch kr\u00f4\u010dikov ubehol u\u017e dlh\u00fd \u010das a my na z\u00e1zraky never\u00edme. Nech to znie akoko\u013evek \u201etvrdo \u010di neromanticky\u201c, n\u00e1m sa \u017eije takto \u013eah\u0161ie. Nau\u010dili a denne sa u\u010d\u00edme \u017ei\u0165 v kontakte s realitou. Vilko je vo veku 5,5 roka ment\u00e1lne ako pribli\u017ene jednoro\u010dn\u00e9, mo\u017eno rok a pol star\u00e9 die\u0165atko. Mysleli sme si, \u017ee za jeho inakos\u0165 m\u00f4\u017ee len autizmus, no vyzer\u00e1 to s n\u00edm menej ru\u017eovo. Miestami sa jav\u00ed ako die\u0165a s poruchou autistick\u00e9ho spektra, no u\u017e dvaja pedopsychiatri sa zhodli na tom, \u017ee ide  s\u00fabe\u017ene aj o stredne \u0165a\u017ek\u00e9 a\u017e \u0165a\u017ek\u00e9 ment\u00e1lne zaost\u00e1vanie.<\/p>\n\n\n\n

Tak u\u017e tu\u0161\u00edte pre\u010do ve\u013ek\u00fd mal\u00fd princ ? Vilko raz bude ve\u013ek\u00fd, no zd\u00e1 sa, \u017ee jeho du\u0161a a myse\u013e nav\u017edy zostane mal\u00fdm chlapcom. Rastie n\u00e1m pred o\u010dami, no zost\u00e1va die\u0165a\u0165om.<\/p>\n\n\n\n

Je e\u0161te mal\u00fd, na uzavretie fin\u00e1lnej diagn\u00f3zy mus\u00edme po\u010dka\u0165 pribli\u017ene do jeho \u0161iestych naroden\u00edn, \u010do je v septembri 2025. V j\u00fani 2024 Vilu\u0161ko absolvoval dovy\u0161etrenie na neurologickom oddelen\u00ed v Brne, \u010do vyl\u00fa\u010dilo mikrocef\u00e1liu a nateraz ani neobjavilo \u017eiadne \u010fal\u0161ie po\u0161kodenia mozgu.  Tak\u017ee dobr\u00e1 spr\u00e1va. Z\u00e1rove\u0148 u\u017e dnes m\u00f4\u017eeme s istotou nap\u00edsa\u0165, \u017ee v septembri 2025 Vilko kone\u010dne nastupuje do par\u00e1dnej \u0161k\u00f4lky! Museli sme kv\u00f4li tomu oto\u010di\u0165 n\u00e1\u0161 svet celkom in\u00fdm smerom, ale ve\u013emi sa z toho  spolo\u010dne te\u0161\u00edme.<\/p>\n\n\n\n

Ak sa chce\u0161 dozvedie\u0165 viac, \u010d\u00edtaj podstr\u00e1nku \u201eVilko aktu\u00e1lne\u201c alebo n\u00e1s sleduj na Instagrame velkymaly_princ<\/a>.<\/p>\n\n\n\n

<\/p>\n","protected":false},"excerpt":{"rendered":"

Vilkov pr\u00edbeh Vol\u00e1m tieto deck\u00e1 \u2013 \u201edeti s pr\u00edbehom\u201c \u2013 za\u017eili toho za svoj kratulink\u00fd \u017eivot \u010dastokr\u00e1t viac, ako stihne be\u017en\u00fd \u010dlovek za cel\u00fd \u017eivot.  A na to, aby ste sa podrobne dozvedeli, \u010do u\u017e maj\u00fa za sebou, mus\u00ed odznie\u0165 pr\u00edbeh. Toto je ten n\u00e1\u0161 \u2013 Vilkov. Bol druh\u00fd september 2019 a k\u00fdm v\u0161etci vyprev\u00e1dzali deck\u00e1 do \u0161koly, […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"class_list":["post-77","page","type-page","status-publish","hentry"],"yoast_head":"\nVilkov pr\u00edbeh - ve\u013ek\u00fd mal\u00fd princ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.velkymalyprinc.sk\/?page_id=77\" \/>\n<meta property=\"og:locale\" content=\"sk_SK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vilkov pr\u00edbeh - ve\u013ek\u00fd mal\u00fd princ\" \/>\n<meta property=\"og:description\" content=\"Vilkov pr\u00edbeh Vol\u00e1m tieto deck\u00e1 \u2013 \u201edeti s pr\u00edbehom\u201c \u2013 za\u017eili toho za svoj kratulink\u00fd \u017eivot \u010dastokr\u00e1t viac, ako stihne be\u017en\u00fd \u010dlovek za cel\u00fd \u017eivot.  A na to, aby ste sa podrobne dozvedeli, \u010do u\u017e maj\u00fa za sebou, mus\u00ed odznie\u0165 pr\u00edbeh. 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